Medicine is an art, as well as, a science. As a society, we have trapped ourselves into only treating after exhaustive measurements have been made. Much of good medicine comes from observation not measuring. There is a reason it is called, the 'practice' of medicine. That is because it does take practice and that practice is observing what works and doesn't work in real life.
It seems that the Down syndrome community has trapped itself into the 'measurement hole'. We seem to be stuck in a place that does not allow us to use logic and good practice to treat our population. Why are we doing this to ourselves?
Down syndrome is so far ahead of any other disorder as far as basic research goes but we are the farthest behind in the practical application of that information. The autistic community jumps at every little morsel of information. We are stuck in 'we must wait for every detail of every system before we act mode'.
Do you realize no one knows what causes Autism? The cause of Down syndrome has been known for 60 years and now that there is a mouse model scientists can look into the details of the brain function.
The clinical observation of the 300 children and adults on the CMF protocol is that there is an amazing improvement of function including: verbal abilities, long term memory, working memory, gross motor and fine motor. What part of this do you NOT want?