If I read one more time that Down syndrome can't be cured because it is a chromosome disorder, I will scream!!!!!!
Why did we get shoved into that box?
Rett syndrome is a chromosome disorder.
Go to the Rett syndrome website
"The core mission of the IRSF (International Rett Syndrome Foundation) is to fund research for treatments and a cure for Rett syndrome while enhancing the overall quality of life for those living with Rett syndrome by providing information, programs, and services."
Fragile X is a chromosome disorder.
FRAXA is a nonprofit organization run by parents. Our mission: to find treatments and a cure for Fragile X by funding the most promising research. FRAXA has funded $18 million in research.
Prader-Willi syndrome is a chromosome disorder.
There logo is below:
AAAAaaaaaggghhhhh!!!!
Everyone gets a CURE but Down Syndrome!!!
We should at least try!!!!!!!!!!!
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I have a five year old daughter with Rett Syndrome and a 11 month old son with Down Syndrome. I know that some of the TOP researchers in the field are absolutely studing BOTH!
ReplyDeleteI'm not saying researchers are not studying both or that I don't want them to find a cure for both. My point was that in the DS community it is forbidden to use the word "cure". While in other disorders, it is perfectly accepted and desired.
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